William
Whitehouse, audit representative
Academic
Child Health
E
Floor East Block
Queen’s
Medical Centre
Nottingham
NG7 2UH
william.whitehouse@nottingham.ac.uk
I was
delighted to be re-elected for a further 3 year term as Audit Rep. on the BPNA
Council. I am very grateful to Carlos De Sousa for volunteering to help with
the organisation and documentation, and the establishment of a BPNA audit
toolbox, which will be available on the BPNA and PEIR websites in due
course.
There
were 11 at our informal open meeting at the Newcastle Annual Meeting 17.1.02
and apologies were received from a further 4. Topics discussed are reviewed
below.
1.
Guillaine Barre syndrome. A draft web based guideline and resource, including
draft audit data sheet, references and technical report is being prepared by
Deirdre Peake (SpR Birmingham), Richard Appleton (Liverpool) and myself. It is
almost ready for comments. We plan to post it on a web site soon, see next
newsletter for further information. Richard Appleton has engaged Alder Hey
Children’s Hospital in developing a detailed care-path, based on this
preliminary work. Further help with this would be welcome, e.g. in undertaking
a formal Delphi consensus exercise in due course. Contact William
Whitehouse (Nottingham).
2.
ADEM has
been suggested as a topic for future BPNA wide audit. Anyone interested in
helping please contact Chris Rittey (Sheffield).
3. Idiopathic (benign) Intracranial Hypertension. A
questionnaire has been sent to consultant paediatric neurologists by Cathy
White (Swansea) to ascertain our perceptions of our current management. A draft
audit data sheet is under revision by Ming Lim (SpR Guy’s London). Jean Pierre
Lin (Guy’s London) will approach his Local Research Ethics Committee about the
issue of a register to audit diagnosis, treatment and outcomes. Contact
Cathy White.
4.
Steroid treatment in epilepsy has been suggested as a topic for future
BPNA wide audit. Anyone interested in helping please contact Peter Baxter
(Sheffield).
5.
Headache in children. Data from a joint audit using a draft audit data
sheet, developed by Ishaq Abu-Arefeh (Stirling & Glasgow), David Symon
(Middlesborough), William Whitehouse (Nottingham) was presented at the BPNA
(Callaghan M et al. Dev Med & Child Neurol 2002;43:S90:25).
The group have also developed a very useful patient headache diary. There was
an informal open meeting to discuss future projects 17.04.02 at York. Anyone
interested in this or related paediatric headache issues please contact
Ishaq Abu-Arefeh.
6.
Dancing Eye syndrome. Mike Pike (Oxford) has secured Oxford MREC approval
for a register for a national survey. We hope to develop this as a first topic
for a “BPNA Surveillance Unit” (BPNA-SU). Contact Mike Pike.
7.
Other
topics at various stages, which will be included in the BPNA tool box include:
7.1
audit
of first clinic attendance with suspected epilepsy
7.2
audit
of seizure clinic patient and carer satisfaction
7.3
audit
of convulsive status epilepticus in A&E
7.4
audit
of pre-hospital use of rescue treatment for convulsive epileptic seizures
7.5
audit
of refractory status epilepticus on PICU
7.6
audit
of nutritional and biochemical effects of ketogenic diets
7.7
child’s
Glasgow coma scale.
Contact William Whitehouse (Nottingham) for
further information william.whitehouse@nottingham.ac.uk.