william.whitehouse@nottingham.ac.uk
1.
Audit of first
seizure clinic attendance:
The
revised version of the standard data sheet is not yet ready. Anyone who
can help or who has a diligent colleague, perhaps an SpR, please get in touch.
See Mar et al. Epilepsia 2000;41:S7:193.
Contact:
William Whitehouse
2.
Management of Convulsive
Status Epilepticus / Acute seizures in A&E:
I would like to hear from BPNA members, their trainees or
A&E colleagues, from large A&E departments, who would like to join in.
The data collection does need active involvement of the A&E doctors and
commitment from keen A&E nurses, who would be rewarded by recognition in
presentations and publications. So far Birmingham, Liverpool, Manchester are
pressing on with an audit of the new guidelines. See Status…Arch Dis Child
2000;83:415-419.
Contact: William
Whitehouse
3.
Dancing Eye syndrome
(Opsoclonus / myoclonus)
This is an excellent topic for
multicentre audit,
level 1: a prospective survey of
current practice
level 2: a register and follow-up study, with consent and
M/LRECs approval
level 3: additional biological studies on blood and CSF.
MREC approval for this audit, data collection, follow-up
option and blood and CSF has been submitted (Oxford). We hope to be able to
start by the end of the year.
Contact:
Mike Pike
4.
Guillian Barre
syndrome care path / guideline
William
Whitehouse, Richard Appleton and especially Dierdre Peake (Paediatric Neurology
SpR in Birmingham) have made further progress, but the first draft is not yet
quite ready. We will need help and comments from you when it is, perhaps along
the lines of a Delphi iterative review. Anyone able to help with this please
make contact. See Peake et al. Dev Med Child Neurol 2000:42;S85;22-23.
Contact:
Richard Appleton
5.
Ketogenic Diet
Information sheets and audit sheets available from
“KetoPAG” our UK paediatric dieticians and doctors professionals advisory group
(first open meeting 14th June 2001 in London). See Wassmer et al., Dev
Med Child Neurol 1999:41;Suppl.82:32.
Contact: Helen Cross (London)
6.
Idiopathic
Intracranial Hypertension
Cathy White, JP Lin, Ming Lim and William Whitehouse have been
working on a data sheet for multi-centre audit. Cathy is also developing a questionnaire to send to BPNA members
asking what they think their current practice is.
Contact: Cathy White
7.
Children’s
Headache Clinic
A diary and summary data sheet are being piloted, a more detailed data sheet for use in consultation is still being developed. Data is being collected from at least 2 clinics (Birmingham and Glasgow), it would be great to extend this to others.
Contact: Ishaq Abu Arefeh
8.
Management
of refractory status epilepticus on PICU
See Gibbons E et al., Dev Med Child Neurol 2000:42;S85;40-41 and Whitehouse et al., Dev Med Child Neurol 2000:42;S85;6 for preliminary data on
midazolam on PICU Birmingham audit. This has now extended to Nottingham and we
are very keen to extend it to other PICUs, for central collection of audit of
outcome data. We hope to be able then to undertake a multicentre trial of ivi
midazolam up to 24 microgrammes/kg/min with eeg monitoring vs other PICU
treatment e.g. thiopentone infusion.
Contact: Elizabeth
Gibbons or Gavin Morrison.