There will be a chance
for collaborators and the curious, young and old to meet up at the BPNA
conference in Liverpool, at about 14.00 on Saturday 11-01-03. It would be worth
confirming time and venue when we arrive in Liverpool. This will be a fairly informal meeting with
some discussion on topics which are currently running or which anyone would
like to bring up.
1.
BPNA Audit Toolbox Still
work in progress, I hope Carlos De Sousa and I will be able to launch it at the
January 2003 meeting.
2.
Guillaine Barre syndrome The web
based guideline / outline care path set up by Deirdre Peake (SpR Birmingham)
should be ready for all to view (and comment on) by January 2003 too. The
related detailed Alder Hey GBS care path is well underway.
Contact Richard Appleton (Liverpool)
3.
Idiopathic (benign) Intracranial Hypertension Cathy
White and Alison Giles have analysed the results of a BPNA survey of how we
think we manage “BIH” and an abstract has been submitted for the Liverpool meeting.
Ming Lim (SpR Guy’s) and JP Lin are still working on refining the audit data
collection and investigating ethics committee approval.
Contact Cathy White (Swansea)
4.
Acute Transverse Myelopathy Mike Pike
has started a BPSU style survey (the 1st BPNA-SU audit), some of you
will have received a letter. Please please support this initiative. Some
conditions are too rarely seen in general paediatrics for the BPSU to take them
on. The same applies to the next item.
Contact Mike Pike (Oxford)
5.
Dancing Eye syndrome
(opsoclonus-myoclonus) Mike Pike has also taken a lead in setting up a clinical
audit, prognosis study and linked laboratory study. Mike has been visiting
Paediatric Neurology departments and processing local Research Ethics Committee
applications in the last few months. He already has MREC approval, so the
project will soon be off the ground!
Contact Mike Pike (Oxford)
6.
First clinic attendance with suspected epilepsy Further
work on this using the BPNA audit tool has been undertaken in Nottingham by
Daniel Albert (SHO) and Colin Dunkley (SpR). An abstract has been submitted to
the Liverpool meeting, and a revised audit tool should be ready for January.
7.
Convulsive Status Epilepticus in A&E a
prospective audit at Birmingham Children’s Hospital, using a modified BPNA tool
was published:
Quershi A, Wassmer E, Davies
P, Berry K, Whitehouse WP. Comparative audit of intravenous lorazepam and
diazepam in the emergency treatment of convulsive status epilepticus in children.
Seizure 2002;11:141-144.
8.
Other topics at various stages ADEM;
Steroid treatment for epilepsy; Headache and Headache Clinics; One year review
after first clinic attendance with suspected epilepsy; Seizure clinic patient /
carer satisfaction; Refractory status epilepticus on PICU; Nutritional and
biochemical effects of ketogenic diets; child’s Glasgow coma scale.
Anyone with a bright and easy way of auditing the quality
of diagnosis of epilepsies and their differential diagnoses please get in
touch! Perhaps the 1-year after 1st attendance would be a way?
Contact William Whitehouse (Nottingham) for further information.
william.whitehouse@nottingham.ac.uk
William Whitehouse
Nottingham