Guidelines for the Recognition and Management of Childhood Dystonia in the Critical Care Environment

The British Paediatric Neurology Association (BPNA) and Paediatric Critical Care Society (PCCS) are launching a project aimed at developing guidelines on the recognition and management of Childhood Dystonia in the Critical Care Environment.

Development of this guideline is being supported by the Royal College of Paediatric and Child Health. We are now at the stage of consulting on the scope of the project to ensure that it covers the areas our members feel are important to address.

The draft scope document can be found at the following link:
Scope_Critical Care Dystonia Consultation May 2026

We would like to invite you to provide your feedback on the scope at the link below:
https://www.surveymonkey.com/r/KJJF5HB

Dr Daniel E Lumsden
Consultant Paediatric Neurologist
Co-Chair for Guideline Project BPNA

Dr Sofia Cuevas-Asturias
Consultant Paediatric Intencivist
Co-Chair for Guideline Project PCCS