2023 Programme
The conference will be delivered as a hybrid event in Edinburgh on 25-27 January 2023.
Registration will be open from 10.00 on Wednesday 25 January 2023 with the first session beginning at 11.00. The conference will finish on Friday 27 January 2023 at 16.00.
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Wednesday 25 January 2023
Session 1: Perinatal Neurology & Imaging
Professor James Boardman
Chair of Neonatal Medicine and Director of the Jennifer Brown Research Laboratory, MRC Centre for Reproductive Health, University of Edinburgh
'The role of nutrition in promoting healthy brain development after preterm birth’
Professor Nicola J Robertson
Professor of Perinatal Neuroscience, University of Edinburgh and University College London
‘Optimizing outcomes in neonatal encephalopathy: the journey from preclinical to early phase clinical trials’
Session 2: Health Informatics
Professor Aziz Sheikh
Director of Usher Institute, University of Edinburgh
‘Data-enabled responses to the COVID-19 pandemic’
Professor Richard Chin
Professor of Paediatric Neurology and Clinical Epidemiology, Honorary Consultant Paediatric Neurologist, Clinical Director of the Muir Maxwell Epilepsy Centre, The University of Edinburgh and the Royal Hospital for Children and Young People
Dr Jayakara Shetty
Consultant Paediatric Neurologist & NRS Fellow, Royal Hospital for Children & Young People Edinburgh, Honorary Reader, Child Life and Health, University of Edinburgh
‘Using health informatics to improve neurological care’
Session 3: Video Challenge
Can the expert panel diagnose the neurological disorder?
Wednesday Welcome Evening Reception (The Dome, Edinburgh)
We would be delighted if you could join us for the welcome reception at The Dome on the evening of Wednesday 25 January 2023. After the reception you are free to make your own dinner arrangements and explore the wonderful range of restaurants that Edinburgh has to offer. Open to all those registering for the physical conference.
Thursday 26 January 2023
Personal Practice sessions (parallel sessions):
- Identifying and addressing mental health problems in the neurology clinic
- Scoliosis management in children and young people with neuromuscular conditions
Session 4: Novel Therapies
Professor Siddharthan Chandran
MacDonald Professor of Neurology, Director Edinburgh Neuroscience, Head Edinburgh Medical School, Non-executive Director NHSL Lothian Health Board
'Human led discovery and novel approaches to clinical trials'
Professor Adrian Bird
Buchanan Professor of Genetics, Wellcome Trust Centre for Cell Biology, The University of Edinburgh
‘Understanding of and potential treatments for Rett syndrome’
Professor Yanick Crow
Chair of Genomic Medicine, The University of Edinburgh
'Targeted approaches to the treatment of the type 1 interferonopathies’
Session 5: Neurodevelopmental
Professor Peter Kind
Chair of Developmental Neuroscience, Director of the Patrick Wild Centre, The University of Edinburgh
'Mechanisms underlying neurodevelopmental disorders’
Session 6: Epilepsy
Proposer: Professor Finbar O’Callaghan
UCL Great Ormand Street, Institute of Child Health, London
Opposer: Professor Rima Nabbout
Paediatric Neurologist, Necker-Enfants Malades Hospital, Paris
‘Prompt treatment with combination of vigabatrin and hormonal therapy is required to improve outcome in infants with infantile spasms’
Professor Alexis Arzimanoglu
Paediatric Neurologist, University Hospitals of Lyon, France and San Juan de Dios Children’s Hospital, Barcelona, Spain
'Are we missing epilepsy surgery candidates?'
Session 7: The Presidential Plenary
The Ronnie MacKeith Prize: Dr Sophie Adler
Research Associate, UCL Great Ormond Street Institute of Child Health, London Academic Foundation Doctor, Addenbrookes Hospital, Cambridge
‘Integrating AI into the diagnosis of paediatric focal epilepsies’
International Guest: Miss Paula Evans
Founder and Former Chair, Foundation for Angelman Syndrome Therapeutics, Founder and Former CEO, GeneTx Biotherapeutics
'The unlikely journey from mother to drug developer’
Dr Paul Eunson
Thomas TS Ingram Memorial Lecture
‘Communicating and advocating for children and young people with neurological disorders’
Professor Helen Cross
The Prince of Wales's Chair of Childhood Epilepsy, Institute of Child Health, University College London
'The British Paediatric Neurology Association and JLA Priority Setting Partnership: UK research priorities for childhood neurological disorders’
The Ronnie MacKeith Guest Lecturer: Dr Camilla Kingdon
President, RCPCH
'Sustaining our humanity in health care: the case for kindness and compassion in leadership’
Thursday Annual Conference Dinner (National Museum of Scotland, Edinburgh)
Please join us for the conference reception and dinner at the National Museum of Scotland. The night begins with a drink's reception in the museums entrance hall, followed by dinner in the grand gallery. Open to all those registering for the physical conference.
Friday 27 January 2023
Personal Practice sessions (parallel sessions):
- Feeding issues in children and young people with complex neurodisability
- Foetal neurology: What is Neurologist's role?
Session 8: Neuromuscular
Dr Michela Guglieri
Consultant Neurologist at Newcastle University and Newcastle Hospitals NHS Foundation Trust
‘Advances in the care and therapy of Duchenne muscular dystrophy’
Session 9: Acute Neurology
Dr Tsz-Yan Milly Lo
Consultant Paediatric Intensivist, Research Lead in Paediatric Critical Care Medicine, Royal Hospital for Children & Young People, Edinburgh BioQuarter
Mr Jothy Kandasamy
Consultant Neurosurgeon, NHS Scotland
‘Working together in management of acute head injury – a PICU and neurosurgical perspective’
Dr Penny Furness
Department of Psychology, Sheffield Hallam University
Mr Ivan Phelan
Principal Research Fellow, Sheffield Hallam University
‘Immersive virtual reality in children with upper limb injuries: A feasibility study’
Session 10: Hot Topics
Dr Kate Templeton
Consultant Virologist, Royal Infirmary of Edinburgh
‘Polio re-emergence and vaccination’
Professor Bobby Gaspar
MD, PhD, CEO Orchard Therapeutics, Honorary Professor of Paediatrics and Immunology, UCL
‘Gene therapy from bench to bedside: challenges and solutions’
Professor Sanjay Sisodiya
UCL, London
‘Climate change and neurological conditions’